Sunday, September 14, 2008

pain-survival.pdf (application/pdf Object)

pain-survival.pdf (application/pdf Object)

When Your Doctor Won't Prescribe Narcotics: Tips for Getting the Pain Relief You Need - Chronic Pain -

As I sit here now, an under-treated pain patient, I ponder how long it will be before the pain knocks me out or does me in. I overcame cancer and am suffering so bad in such pain - so so bad, and yet am stuck in a cycle of fearful doctors unsure if they can write me what I need. I do not get it. I am ready to get my life back, but spend so much time suffering in my recliner. I try to get out, only to be overcome in the grocery store in tears of pain needing help completing my checkout. I lump over the cart, clinging to it in pain, wondering if any doctor will ever really get it. Pray they do. I slept 14 hours last night/today and it is a reaction from a medication that should treat pain, but really I fear it is deadly and I need them to prescribe percocet, but they don't, so I am a guinnea pig I guess and it only worsens my depression. I have little hope for help, but know God will not give me more than I can handle. I must be REALLY tough. Fight for people like me, I know from different groups I am in that there are tons of us out there. I want these meds so I can LIVE my life, not to ESCAPE it. That to me is the big difference between an abuser and a pain patient. I just can't give up. This is MORE painful and emotionally draining than my cancer treatment and if you knew how horribly traumatic that was, you would be shocked at that statement, but it is true. I have NO medical support for the pain I am in, and no cheer-leaders encouraging me on like before. I have things said like "cant you just think happy thoughts and it will go away" and "oh, your still hurting?" as IF it can just go away. I wish. I wish.
Someone has to know someone who can help me. Please email me if you do. I hate not living. I hate it.

further reading below and at -

When Your Doctor Won't Prescribe Narcotics: Tips for Getting the Pain Relief You Need - Chronic Pain - "When Your Doctor Won't Prescribe Narcotics: Tips for Getting the Pain Relief You Need

Fear of misuse has led some doctors to tighten their prescribing practices.

Even though the risk of addiction to opioid medications is low for chronic pain patients, heightened awareness of abuse and stepped-up law enforcement against misuse has spooked many physicians, making it harder for some pain patients to get the drugs they need."

Friday, September 12, 2008

My Cancer Place - A must-join network!

A new wonderful place I found is My Cancer Place, it is a place to connect and share. I would recommend this to everyone! Check it out and add me as a friend here:

Have a great weekend!

Sunday, September 7, 2008

Mister Poll: Presidential Election 2008 - ALL Parties

Mister Poll: Presidential Election 2008 - ALL Parties

If the election were held today, who would you want to win? Most polls only ask about the two major parties and they usually ask who you will vote for. This is a different question. Regardless of who you think will ultimately win this election, who would you prefer to see residing at 1600 Pennsylvania Avenue?
Who do you WANT to win the presidential election in 2008? Candidates taken from wikipedia (,_2008). Format is presidential candidate, party, running mate. This poll will allow for multiple selections (similar to instant runoff voting). If there are multiple candidates that you wouldn't mind seeing in the white house, please select all of those candidates.

Two Republican Conventions in 2008: An Eyewitness Contrast -

Two Republican Conventions in 2008: An Eyewitness Contrast - "Two Republican Conventions in 2008: An Eyewitness Contrast
Click to view forthepeople's profile Posted by: forthepeople // 2 days ago // viewed 496 times
Saint Paul, Minnesota // embed media
Last updated: 1 day ago
You have probably seen some coverage from inside the two competing Republican conventions in Minneapolis-Saint Paul. However, have you seen the contrast outdoors?

Comparing the Republican Party convention at the Xcel center in Saint Paul with Congressman Ron Paul's Campaign for Liberty convention across town at the Target center in Minneapolis, the difference was so drastic that it can easily be summarized in only a few words:

Republican Party = War, Government, and Inflation

Campaign for Liberty = Peace, Freedom, and Sound Money

The two conventions were a complete contrast. They were both full of thousands of cheering supporters, but Ron Paul's convention was paid for and supported entirely with donations and volunteers. The Republican Party convention, on the other hand, was paid for with $50 million dollars in taxpayer money for security, and an additional $16 million dollars in government grants for the convention. By the way, the Democratic Party convention received the same government funding of $66 million; as a taxpayer, you paid for both the competing Republican Party and Democratic Party conventions whether you wanted to or not.

In total, the government will forcefully take from the American people over $132,000,000.00 dollars, probably through inflation, to cover the money it gave away to both the Republican and Democratic political parties, in order to keep the American people out of the conventions, while creating propaganda to show them on TV.

While the Republican and Democratic political parties are using force, and spending huge amounts of taxpayer money to remain in power, Ron Paul's message of freedom and Campaign for Liberty continues to spread among the people of America by word of mouth and through volunteers and donations. Freedom is popular in America; it doesn't need a sales pitch.

Even outside the two convention centers, the difference was like night and day.

The Republican Party convention center and about two city blocks in the middle of downtown were blocked off and surrounded by 8-foot-high steel barricade walls manned by Army military police, federal agents and local police to keep the public out ( image 1 ). There were literally thousands of police (news reports state 3,500), in black uniforms, black helmets, black body armor, and armed with riot gear, such as long wooden clubs and zip-ties for handcuffs. The police were surrounding the walls of steel barricade fences placed around the Republican Party convention center and blocking off the convention from the public ( image 2 ).

Public school bus loads of Army soldiers in combat fatigues and riot gear were unloaded, staged, and hiding-out behind the Saint Paul cathedral waiting to be deployed. Dozens of city streets were blocked off from public access with barricades and police. Bridges were blocked off with dump trucks parked across the middle of the road -- U.S. flags blowing in the wind ( image 3 ).

Near the Xcel center, a half dozen Coast Guard boats with M-240G machine guns mounted on the front and back were patrolling up and down the Mississippi river ( image 4 ). Police helicopters were constantly heard circling overhead, as they do at a crime scene.

Camouflaged military Humvees were driving through the city streets and going in and out of the steel barricade fences ( image 5 ). Federal agents were detaining people and searching every single vehicle entering the massive steel gates of the convention area with bomb sniffing dogs.

Sirens from police cars were screeching out everywhere throughout the city as they sped around in front of and behind chains of rental vans packed full of police in body armor with their boots and batons hanging out the open side doors.

I was getting yelled at and threatened by federal agents in blue uniforms, just for taking pictures, but when I asked if it was illegal to take pictures the agents shrugged and walked away - it was apparent their main intent was to threaten people.

Hundreds of people that showed up protesting for peace were being zip-tied, and held in long lines waiting to be processed and hauled away - they were being arrested merely for walking in the 'wrong' area ( image 6 ). The people were being ordered to not walk across imaginary lines, and when they did, they would be thrown to the ground and zip-tied. I was there all day and saw no violent protesting. Incredibly, all the violence was coming from the police.

Yet, the next day, the TV and newspapers would repeatedly state the same phrase over and over again -- that windows were broken, tires slashed, and bottles thrown. Those must have been isolated incidents, because I never saw anything like that. Most these people protesting for peace seemed to be Obama supporters, from the concert across the river. They were carrying Obama and Peace signs, and walking along the streets.

This was supposed to be a political party convention, yet it truly was like a nightmare I could not wake up from; I was ashamed to be associated with the Republican party doing this and I could not believe I was walking down city streets in America.

In contrast, when I went to Ron Paul's Rally for the Republic convention, the Target Center was lined with cheering people enthusiastically waving signs and American flags right in front of the convention center next to the street, even standing out in the rain ( image 7 ).

Cars were honking their horns in support as they drove by. There were only a couple of the regular Target center security guards standing outside the doors. No barricades, no towering steel fences blocking off the city streets and buildings, no Army soldiers, no federal agents, no checkpoints with bomb dogs, no police in riot gear, no helicopters, no gun-boats, no barricaded roads, nothing except for excited supporters. It was like stepping into another world.

Congressman Ron Paul's convention had people outside waving U.S. flags, the Republican Party convention only had flags displayed inside the building behind glass ( image 8 ).

Even those not attending the conventions could see the extreme contrast, merely in driving by both convention centers, but what was being said inside was the most important;

Republican Party convention versus Campaign for Liberty convention:

1) War versus Peace

2) Security versus Freedom

3) Deficit Spending versus Sound Money

4) Welfare versus Personal Responsibility

5) Government versus Liberty

There was a lot of talk at the Republican Party convention, but unfortunately, that's all it was -- hot air. Ron Paul seems to be one of the very few politicians that always tells the truth and always votes in accordance with the Constitution.
During the 2008 elections, many Republicans talked about the greatness of Ronald Reagan, but what they seem to be ignorant of is that Ronald Reagan campaigned for Ron Paul. The Republican party has lost it's way.

A large billboard downtown seemed to sum up America today, reading, " Truth is treason in the empire of lies." - Preface, The Revolution: A Manifesto by Ron Paul ( image 9 ).

Here is a rare media video posted today from Fox News that gives a quick summary of differences between the Republican Party and Congressman Ron Paul: Ron Paul Rejects 'Fringe' Label, Claims Conservative Mantle
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Saturday, September 6, 2008

Support the Bill of Rights |

Support the Bill of Rights | "Adolescent and Young Adult Cancer Bill of Rights"

Importance of the Bill

There are approximately 70,000 people aged 15-39 diagnosed with cancer every year. For over two decades there has been little or no improvement in survival for this age group. By signing this bill, you are supporting the Adolescent and Young Adult Cancer Bill of Rights to be established as a standard for care to meet the needs of this underserved population.

Please go to their website and sign the petition! Thank you!

Adolescent and Young Adult Cancer Bill of Rights

We are neither pediatrics nor geriatrics,
we have unique needs- medically, socially, and economically.

However, the rights and dignity of adolescent and young adults are
equal and vital to all individuals.

We deserve to have our beliefs, privacy,
and personal values respected.

Access to care is a right,
not a privilege.

Our rights, as we perceive them to be and intend to preserve them, are:

  1. The right to be taken seriously when seeking medical attention to avoid late diagnosis or misdiagnosis, and entitlement to separate and confidential discussions regarding our own care.
  2. The right to affordable health insurance, as well as early detection tests unhindered by insurance or socioeconomic status.
  3. The right to be offered fertility preservation as well as current information and research regarding ongoing and potentially lifelong effects of cancer treatment that would affect our fertility.
  4. The right to be informed about available clinical trials and given reasonable access to them.
  5. The right to untethered access to adolescent and young adult cancer specialists and, when requested, a second opinion regardless of insurance or geographic location.
  6. The right to access a social worker or caseworker who is well-versed in adolescent and young adult cancer specifics.
  7. The right to “generationally applicable” psychosocial support.
  8. The right to have our insurance and position as a student or employee protected by law while dealing with our cancer in order to minimize discrimination.
  9. The right to clear explanations regarding the long-term side effects of our disease and its treatment, and to be offered all available and applicable physical reconstruction and rehabilitation options.
  10. The right to have all of our treatment options explained to us in full detail, to have our questions answered, and to receive clarification when requested so that we can be an active part of our own care.

Preserve our potential.

Friday, September 5, 2008

Cancer Links and Support :-)

Sites: - they also have a database of other help sources

The American cancer society can assign you a patient navigator

LIVESTRONG can help assign you a patient advocate

More stuff I found:

Scholarships and Financial Aid:

Andre Sobel River Of Life Foundation, 310-276-7111Presents an unrestricted annual cash award to young people who have survived a life-threatening illness. [website] [email]

Brenda Mehling Cancer Fund, 818-737-1866Supporting patients 18-40 currently undergoing cancer treatment by covering services to meet daily needs, such as co-payments, health expenses, rent, insurance, etc... [website] [email]

Cameron Siemers Foundation For Hope, 877-774-7768Offers life grants to young adults with life threatening illnesses inspiring a new generation of survivors to create a life of hope and possibility. [website] [email]

Cancer For CollegeAwards national scholarships and financial aid to cancer patients and survivors, as well as amputees under the age of 35. [website] [email]

Cancer Survivor's Fund, 281-437-7142Scholarships and financial assistance to help young adults obtain prosthetics or continue their education for personal growth. [website] [email]

FinAid, 724-538-4500Scholarships for cancer patients, cancer survivors, children of a cancer patient or survivor, students who lost a parent to cancer, and students pursuing careers in cancer treatment. [website] [email]

Jay's World, 516-297-5328.Assists college-bound adolescents who have been diagnosed with cancer and their families through an annual scholarship program. [website] [email]

Michael A. Hunter Memorial Scholarship, 717-215-0943National scholarships for high school seniors, community college and four-year university students with leukemia and/or bereaved young adults due to leukemia. [website] [email]

National Collegiate Cancer Foundation, 717-215-0943Enabling and empowering college students who are battling cancer with emotional, psychosocial and financial support including scholarships. [website] [email]

Nicki Leach Foundation, 904-304-8531Lifestyle scholarships and financial assistance for adolescent and young adult cancer survivor students that provide for everyday expenses like car payments, clothing and more. [website] [email]

PAF 'Scholarships for Survivors', 800-532-5275Annual scholarships for adolescent and young adults with cancer under the age of 25 that provide financial assistance covering related expenses. [website] [email]

The Ryan Mullaly Second Chance FundOffers scholarship assistance to young people whose high school years were disrupted by cancer and whose ability to qualify for most scholarships was precluded by the extensive absenteeism and physical disabilities which result from chemotherapy and radiation.[website] [email]

The SAMFund, 617-780-9606Helping young adult cancer survivors with a successful transition into their post-treatment life by providing financial support through grants and scholarships. [website] [email]

Stephen T. Marchello Scholarship Foundation, 303-886-5018Offers post-secondary scholarships to current year high school graduates who are survivors of cancer who reside in Colorado, Montana, California, and Arizona. [website] [email]

SuperSibs Scholarships, 866-444-7427Scholarships to students who illustrate their ability to take a cancer experience and turn it into a positive, strength-building experience. [website] [email]

Ulman Cancer Fund For Young Adults, 888-393-FUNDSupporting, educating and connecting young adults affected by cancer through on-line resources, college scholarships, advocacy and awareness. [website] [email]

Working Against Cancer, 619-269-6767Assists young adult cancer survivors (ages 30 yrs and under) by providing awards toward academic and vocational education. [website] [email]

Other Financial Aid Resources:
(Organizations who don't necessarily focus on young adultsbut who provide similar financial assistance services)

American Cancer Society, 800-ACS-2345Survivors of childhood cancer can turn to the American Cancer Society for help paying tuition, books, and room and board[website] [email]

Children of Breast Cancer, 423-842-3329Provides scholarships for secondary education especially to children who have lost a parent to breast cancer as well as to children of breast cancer survivors. [website] [email]

HealthWell Foundation, 800-675-8416Helps individuals afford prescription medications they are taking for specific illnesses by providing financial assistance to cover certain out-of-pocket health care costs. [website] [email]

Leukemia & Lymphoma Society, 800-955-4572Co-Pay Assistance Program offers assistance to patients toward private health insurance premiums, co-pay obligations , etc... [website] [email]

Patient Advocate Foundation, 866-512-3861The Co-Pay Relief (CPR) Program provides direct co-payment assistance for pharmaceutical products to insured Americans who financially and medically qualify. [website] [email]

Patient Services Incorporated, 800-366-7741Dedicated to subsidizing the high cost of health insurance premiums and pharmacy co-payments for persons with specific chronic illnesses and rare disorders. [website] [email]


Digg - YELLS for Ron Paul IGNORED DURING NOMINATION !: "YELLS for Ron Paul IGNORED DURING NOMINATION ! watch! — Not just once, in fact during the the whole event people declaring 'Ron Paul' as votes for their state or a nomination were ignored or had their microphones turned off. * And of course No Ron Paul signs were allowed either."

Office of the House Republican Leader
H-204 The Capitol
Washington, DC 20515
Phone: (202) 225-4000
Fax: (202) 225-5117

Tuesday, September 2, 2008

The First Giveaway « After cancer, now what

The First Giveaway « After cancer, now what

I wrote my first post on this blog on April 13th with no idea of where I or it were going. Now as I write this I’m closing in on 10,000 hits. So now it is time for my very first giveaway!

This isn’t a fancy site and I don’t have any sponsors so no cars or laptops but here’s what I do have! Of course sponsors are welcome, cars, laptops, vacations all are welcome.

I found Chemo Brain at my local fake boobie store and got a huge kick out of it. It is a standard size button about 2 inches wide.

Then of course if you have chemo brain you need a car finder when you’re in a parking lot. Me, I have to write down where I’ve parked and carry it in my pocket. You can be stylin’ with this ribbon that you stick on the end of your car antenna. Definitely a more socially acceptable solution than hitting the panic button as I usually do.

Rene Caisse - Essiac Cancer Alternative and Natural Treatment